Written by Mom, Stephanie Warren
August 10th, 2014 my world was turned upside down, and will never be the same! At about 5 a.m. my water broke while I was sleeping. I felt a large gush of water, a little pressure and then another gush of water. I woke J.C. and told him that my water had just broke, he thought I was talking in my sleep. He lifted the blankets, and sure enough my water had indeed broke and I was in a huge puddle of water!!! He immediately got up and got dressed. I made my way to the bathroom, I was going to get in the shower before we headed to the hospital. I got on the toilet to dry myself but when I went to wipe, I felt something. I didn't know what it was so I immediately yelled at J.C., he came to look.... it was part of the umbilical cord. He called the hospital and they said to get here QUICK!! I called Robyne Zollinger, our neighbor, with one phone, while J.C. called his mom on the other phone to come over and get the kids. Robyne was closer and could be here the quickest. We also called my mom and dad while we were on the way to the hospital. I didn't get an answer, so I kept calling... still no answer, so I sent them both a text message.
We got to the hospital and they were waiting in the parking lot for us. They had a bed slanted in the down position, I got on the bed, hanging upside down. The nurse stripped my pants off in the parking lot, jumped on the bed with me, and shoved her hand up my vagina. She was trying to get pressure off the cord so the baby could still get oxygen, since the cord gives the baby everything they need. I was then rushed down hallways into the OR where Dr. Cannon was waiting to perform an emercency c-section. I remember hanging on for dear life trying not to fall off the bed while being wheeled through the hospital, the lights on the ceiling were flashing, I finally had to close my eyes because all the movement was making me sick. The nurse also cut my shirt off in order for surgery. I remember asking the nurse if I was going to be able to deliver vaginally, and she said no we have to do emergency surgery. I was scared at this point, but I don't remember anything after this point.
I woke up to the lights flickering again, and hear noise in the background with people talking but can't understand what they are talking about. I was in the recovery room. I was shaking, my jaw felt like lock jaw, and my right elbow ached. Next, thing I know I was being wheeled around again in the hospital, I end up in the ICU now. While in surgery, my heart beat had dropped really low, and I was having abnormal heart rhythmns. So, I was sent to the ICU in order to monitor my heart.
I had learned that I had indeed gave birth to a little boy at 5:42 a.m. He was 5 pounds 12 ounces and 18 inches long, but he wasn't doing good and was being prepped to be life flighted to Boise to be in the NICU. The nurses did tell me that I was going to be able to at least see my baby before he would leave. They brought our baby in a little glass cage, I was only able to touch him for a few minutes. I felt devistated, there was nothing I could do for him!! To see him like that broke my heart, but I knew he would get the best care that he needed. We didn't know what was wrong just that he was being moved to Boise.
Meanwhile, J.C. didn't know what was going on with me, but he was able to go be with the baby in the nursery. J.C. was also able to go in the ambulance while they took the baby to the airport to transport him to Boise.
I didn't see J.C. until I was in the ICU. I remember thinking in the OR, "Where is my husband, and is my baby OK?" but I can't remember much of what was told to me. I was in the ICU and asked J.C. if he ever got a hold of my parents, he said, "NO." I tried calling them again, and still no answer, and still no response from text messages. I was sooo upset that I could not get a hold of them, I needed them!!! I finally had J.C. call Grandma to go see where they were and why my parents had not answered their phones!! We finally got a hold of my parents, and they came to Burley to the hospital and checked on me. Then my parents left to go to Boise for us to be with our baby, since I was stuck in the hospital and J.C. would not leave my side. When my parents got to Boise, I asked if they would contact someone and get the baby a blessing. The hospital had a list of LDS members they could call, and they were able to go to the hospital and bless our baby.
I called Robyne Sunday afternoon to see if Jon Zollinger would come give me a priesthood blessing, and they came with no questions asked. Soon Jon and Trevor Stapleman showed up with open arms and gave me a blessing. I know this helped me with the trials I was being faced with and also the trials to come!
While I was in the ICU, I was on morphine for pain from the surgery. My magnesium level was also really low, so I was given 2-3 bags through my IV. I was not myself and felt really wierd I could not concentrate, was very jittery, and could not sleep. I would be awake every 10-15 minutes and not know where or what I was doing! I was also having to get EKG completed every 6 hours to monitor my heart, which consisted of having blood drawn and stickers placed in about 7 locations on my chest and then a scan taken from the heart. I also had pressure belt socks on my calves and legs to help circulate blood flow through my legs so I would not get blood clots. Dr. Spackman was the heart doctor taking care of me. I spent the night in the ICU and was released back to Labor and Delivery Monday afternoon.
I could not get out of bed by myself, my legs were dead. I remember trying to lift them and I could not move them. But once I had my legs over the side of the bed, I had to stand there for a few minutes and let things settle, then I could slowly make my way to the bathroom. The doctors wanted me to try to start walking soon, in order to help the healing process and to prevent blood clots. I was pretty out of it while on the morphine, I remember telling the nurse just to leave the light off, close the door, and put my ear plugs in and just slept. I felt a lot better when I was off the morphine and was not getting magnesium.
After the baby was in Boise, we talked with the Doctor. They told us the baby possibly had brain damage but they did not know for sure. They also were "cooling" the baby in order to keep brain activity low. Monday afternoon I walked slowly to the Labor and Delivery department where I stayed until Tuesday morning. While here, I basically just slept as well. I was having troubles sleeping, so the nurse got me some nausea medicine and a side effect to that pill was being tired and sleepy. It was still hard trying to sleep knowing that my baby was in Boise and not knowing anything or having my baby with me!!
We finally decided on a name for the baby. His name is Axel J Warren. We had two names picked out, and for weeks prior to his birth we had been asking the kids what we should name their brother. For the longest time it was "Baby Brother." We took a family vacation the middle of July, and when we got back, all of a sudden the kids started calling the baby "Axel." I told J.C. since the kids had been calling him Axel, maybe we should call him Axel so the kids would not be confused if we changed his name. So that is how Axel got his name. Axel means "father of peace."
Jeanette brought the kids to see us while we were in the hospital. They knew their baby brother had been born and wanted to see him, but they were disappointed when we wasn't with us. We just told them that Axel was really sick and was in a different hospital but mommy and daddy would go see him soon! They were ok with that. So Tuesday morning rolls around, I get released from the hospital. J.C. and I head home long enough to get some clean clothes and another bag packed, food loaded in the 5th wheel camper and head to Boise to be with Axel. We didn't know how long we would be there or what was going on either. We finally arrive in Boise that evening, to find our precious Axel hooked up to many machines, and on a ventilator to help with breathing. The doctor informed us that they still were not sure about the brain damage, but there was a MRI scheduled for Thursday, August 14. Wednesday, when we arrived at the hospital we learned that Axel had also been having a few seizures, so he was being monitored with an EEG, which looked like he had a gauge wrapped around his head with blue tape holding the gauge in place. He also was continuing to have his body temperature cooled. The Elder's that went to the hospital on Sunday to bless Axel, came again on Wednesday to visit us and see how things were going. I asked them to give myself, J.C., and Axel another blessing, and to be with the doctors and staff, and for the MRI to go well.
We were told that the doctors were going to start warming Axel's body and if all went well with that, he should be up to body temperature by 6:15 p.m. and that I would FINALLY be able to hold my baby for the first time!!! I could hardly stand the wait, and would not leave the hospital. The nurses would increase Axel's body temperature 0.5 degrees an hour. It was almost 9 p.m. until I was able to hold our baby, between shift changes and different things. I just held Axel for hours, I didn't want to let him go!! I remember just staring and crying for my baby, not knowing all that is going on. I sooo badly want to kangaroo cuddle him, but that was just not an option. I even fell a sleep while holding Axel, I just didn't care about anything, I had everything I wanted at that moment! After a few hours, I decided we should go, I was pretty exhausted and starving since we did not leave and get dinner, but I was SOOO EXCITED to FINALLY hold my baby for the first time!!!
Thursday, the MRI was scheduled for 10 a.m. I wanted to be in the hospital to see Axel before the doctors took him off for the MRI. The MRI would probably last about 2 hours to complete with all the transporting involved. We get to the hospital probably 9 or 9:30 a.m. and get informed that the MRI has been postponed a little due to an emergency. So we just waited and waited, and then told it may be later that afternoon before getting MRI done. J.C. and I decide to go back to the camper to get some lunch while waiting. We get lunch and start to head back when mom texts us to tell us Axel just barely left for the MRI. So we stayed at the camper and rested for a little bit. Axel finally gets back from the MRI around 3:30 p.m. We wait for the report to be read and then we have a consultation with all the doctors for the results. There were a lot of people in the meeting with us: Dr. Scott Snyder, Dr. Fry, Nick (nurse), a patient coordinator, Gene and RoseAnn Vaughan(my parents), Paige Calhoun. The doctors came right out and told us all the facts. Basically, Axel did indeed have severe/global brain damage. They said usually when they see umbilical cord prolapse, damage is done to the organs like the kidney and the liver, and then a little damage to the brain... but in Axel's case ALL the damage went to his brain.
We were faced with MANY tough choices at this point. If Axel were to survive, it would mean he would be in a wheel chair, need a feeding tube, and a breathing machine, and could be blind, deaf, and the most interaction we would have with him might be a smile if at most. He would need 24 hour care. My heart just sank, and I think I blanked out most of what the doctors said, not wanting to believe another word they told us!!! I was sick to my stomach knowing that our precious baby was having soo many difficulties! and WHY??? What did we do? I'm so glad that my parents were there with us, because they were able to ask the doctors questions we DID NOT want to ask, or couldn't ask like, "Will Axel survive", "Is there any chance that Axel will have any type of normal life", "Is he sufforing now", "What kind of quality of life would Axel have", "If we pulled life support, how long would Axel live", "Would Axel be able to donate organs" we had sooo many questions going through our head at this point it was hard to concentrate on ANYTHING! We just sat and talked with the doctors for a while, then they left us to be with our family. The doctors told us it was not a decision that had to be made at that moment, but depending on our choice we would have to make more decisions like... If Axel were to be kept alive, he would need surgery right away, which poses a risk of even surviving the surgery; and if we were to remove life support, then we would need to make decisions about organ donations if that was something we were interested in. The decided we would meet with the doctors on Friday to let them know our decision. We were all heart broken and devastated! J.C. and I would not want to live life if there was no quality of life in the future. Our parents would not tell us what to do, and couldn't make any type of decision for us. My parents and Paige left J.C. and I to ourselves. My Mom went and called J.C.'s mom and told her they needed to come to Boise ASAP that we needed them, they could not come until Friday morning. We needed to sleep on things, the hospital was able to get a room in the NICU for J.C. and I. I didn't sleep at all that night!!
J.C.'s parents got to Boise around 8a.m. Friday morning, we had approved for them to go visit and hold Axel and know any information that wanted. J.C. and I were not moving very fast that morning. We finally met up with our families to discuss what we were going to do for Axel. My parents told us if we decided to keep Axel alive they would sell thier house and move closer to help us since Axel would need 24 hour care. J.C. and I knew in our hearts that we couldn't let Axel suffer and live with no quality of life!!! The decision was made to pull life support. This was the HARDEST decision we have ever made. We met with the doctors on Friday to let them know we were going to remove life support on Saturday. We wanted to give Axel a name and a blessing. We made some phone calls and got permission from our Bishop to let J.C. and my dad stand in the circle for the blessing, this had to be approved since they were not active members in the church. Our kids were at either Robyne's or Derk and Amy's house, we wanted them in Boise with us. We called Derk and Amy, to see if Derk would stand in the circle to bless Axel and also if they would bring our kids to Boise. We asked them to be in Boise by 11 a.m. The doctor told us when we remove life support, Axel could live for minutes, hours, days, or even possibly weeks. We were all praying that he would know it was his time and we were ok with the decision and that he would go quickly and not suffer! We all went and snuggled Axel. As each one of us held his, his spirit was sooo strong with us, it was like he told each one of us goodbye, and then his spirit was gone. We were all at peace and knew it was right!
Saturday was all about Axel... We had him named and blessed; had a professional come to take pictures; and also Harlee, Hudson, and Cameron were able to meet Axel for the first time! Axel was blessed by Merle Warren and others who stood in the circle were Derk Despain, Gene Vaughan, and J.C. We didn't tell the kids Axel was not going to be with us much longer, we just let them LOVE their brother. We counted his fingers and toes. Hudson also says, "Does Axel have a weiner? I want to see his weiner!" Everyone got a good laugh, even the photographer who was snapping pictures! We didn't look at his weiner though. Harlee wanted to hear Axel cry, and I wished I could have too, but I just told her he couldn't cry because of the tube in his mouth. The kids were all able to hold and love Axel, and they wanted to play cars and trucks with Axel, they each rounded up a toy car from the toy room and played cars. It was the most precious thing I have seen!! The kids were sooo excited to see Axel. We had soo many people in the NICU on Saturday.. J.C., myself, Harlee, Hudson, and Cameron; Gene and RoseAnn Vaughan; Merle and Jeanette Warren; Samantha Hawkins; J.J., D Ann, Robbie and Richie Vaughan; Trisha, Brian, Trey and Ally Gronenthal; Paige Calhoun; Derk, Amy and Shae Despain; and Jon Wilson. I didn't want the kids to be at the hospital when we removes the life support, so Sam and Paige took the kids for the afternoon. They went to the park and then went and spent the night at Aunt Paige's house and had a blast!! They petted the horses, fed the chicken, ate tomatoes from the garden, and I don't know what else! J.C. and I left the hospital grounds and got some lunch because the plan was after we ate to go back to the hospital and remove the life support. Our parents had went back to the camper to eat as well, but J.C. and I just needed to leave and have some time together to think. After eating, we went to the camper to pick up our parents and head back to the hospital, which I was dreading!
Our parent's were outside of Axel's room waiting. The doctor's waited for our ok to move forward with removing the life support. How can anyone be ready for this!?! I bawled as they removed the tubes. I couldn't control myself. The doctors gave Axel a shot of morphine, so that he would not be suffering when they removed life support. After they removed the tubes, Axel was placed in J.C. and I's arms, we just held him and told him how much we loved him, that things would be ok, that Axel needed to ALWAYS watch over us especially his sister and brothers, to fly high, and that it was ok he could we were ok with that decision. Axel took a few breaths, but it was not long, and I stopped crying and was comforted with a peaceful feeling; it was that moment that Axel had passed away. I remember looking at Axel, and it looked like he had a tear of joy in his eye. Axel became an angel at 5:45 p.m. on Saturday, August 16, 2014 in Boise, Idaho. Our parents also knew the exact moment Axel passed away before the doctor had told them, it was like his little spirit was with J.C. and I and then went outside the room to our parents and then went on to Heaven. The doctor told us Axel had passed away a lot sooner than what they had anticipated, which was a good thing. I will never forget watching our baby take his last breath! It was also a very cherished moment, I'm glad we were able to be there with our baby in the end.
He was so perfect, it is just really hard to understand "WHY?" I know without a doubt that Axel lived for 6 days, in order to meet his sister and brothers, and soo many family members!! After Axel passed away, we just held him, the doctor just stayed with us and talked and cried with us. Our parents came in after Axel passed as well, and loved J.C. and I and then snuggled our Angel again.
The hospital has some volunteer programs that offer services to patients who have babies pass away. One program was "Now I Lay Me Down To Sleep" it was a professional photographer who came and took pictures for us. Chad, the photographer, was so sweet and came and took pictures of the kids and us, but then he also came back and took pictures after Axel passed away. I will cherish them forever! The other program was a guy who makes plaster moldings of the hands and feet, and puts them on a plaque with the baby's name and dates. They are precious!
Written by Mom, Stephanie Warren